Wordless Wednesday: Seven Dwarfs At Work

While New Fantasyland is open at Disney World, one big section is still being worked on: The Seven Dwarfs Mine Train.  While the dwarfs (and Disney engineers) are hard at work building it, here is a sneak preview and some photos of the barrier.

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Disclosure: I was invited to the New Fantasyland media event December 5th through 7th. Disney paid for my travel, our park tickets, room, and a few other items. I was able to take B along as my guest, but we paid for her own travel as well as an extra night in the resort. The opinions expressed above are my own.

Spaghetti is NOT A Finger Food – A Great #Aspergers eBook

Spaghetti Is NOT A Finger Food CoverEver since NHL was diagnosed with Asperger’s Syndrome, I’ve been on the lookout for books, TV shows, and other places where Asperger’s was covered.  So when I heard about Spaghetti is NOT a Finger Food by Jodi Carmichael, I knew I had to read it.

In Spaghetti is NOT a Finger Food, we are introduced to Connor, a third grade student with Asperger’s.  As we follow Connor through the day, we see the various challenges and triumphs that he encounters.  Since the story is told from Connor’s point of view, the reader gets a glimpse into how an Aspie sees the often-confusing neurotypical world.  In addition, you get to see just how an Aspie’s good intentions can go horribly awry.

A few sections of the book stood out to me.  Early on, Connor (having been sent to the hall to calm down) re-enters the classroom.  During his hall time, he has thought of a lot of gecko-related facts.  His brain was positively bursting with facts that he just had to relate to his teacher immediately.  So important was this, that he thought it was completely acceptable to squash another kid’s volcano science project, cut in front of some other kids, and interrupt everyone to tell them all the facts he remembered.

Of course, we can realize the many places where Connor went wrong and what he should have done.  In Connor’s mind, however, the gecko-facts were the most important thing in the world.  His mind was obsessing about them so much that he could not, in the moment, stop himself, think about how his actions might be perceived by others, or even consider the possibility that other people might not be interested in his facts.  The only thing that mattered was telling those facts.

I can easily see parallels in this with NHL.  When NHL gets something in his head, he has to tell everyone.  He doesn’t realize when the people he’s telling aren’t interested because, to him, whatever is highly interesting to him MUST be highly interesting to everyone else.

Another example of single-minded obsession comes into play when Connor – who loves everything to do with dogs – spies a new dogs book in the library.  Since it is above his reach, he seeks out a stool.  Unfortunately, a girl in his class is already sitting in that stool.  Since Connor thinks that stools are for getting books from high up and chairs are for sitting, he doesn’t understand why the girl doesn’t move.  In his mind, his reasoning is perfectly logical and his actions (pulling the stool out from under her) are completely justified.  He is honestly clueless about why she would be upset and about why the teacher wouldn’t talk to the girl about chair-stool differences.

Here, Connor shows how Aspies can sometimes "lock in" on one solution to a problem to the exclusion of other, more reasonable or socially acceptable solutions.  Connor could have found another stool, stood on a chair, or asked his teacher for help, but when he saw a solution (stand on the stool the girl was using), he locked in on that and couldn’t let go of the idea.  NHL does this too from time to time.  His brain will lock into an idea and can’t consider other options.  Honestly, though I’ve worked on this for many years, I still do this also all too often.

Connor also has trouble telling what constitutes friendship.  During lunch, he slurps his spaghetti messily which causes a girl at his table to laugh.  Thinking that this made her happy, he slurps more spaghetti, then escalates it until he is dumping the spaghetti on his head.  The entire lunch room laughs but Connor is oblivious to the possibility that they are laughing AT him.  Instead, he thinks this means that they are all his friends.

NHL can be like this too.  It breaks B’s and my hearts when he describes a friend he has in school only to say hi to them and have them roll their eyes at him and ignore him.  Recently, he’s gotten more aware of this which, in some ways, only makes the situation worse.  He feels isolated and alone.  Having gone through much of school feeling this, I can completely relate to NHL and Connor.  Being an Aspie doesn’t mean you are anti-social.  In fact, Aspies often want to socialize but don’t know how to.  I’ve often described it as craving the spotlight but feeling intensely uncomfortable once it is shined your way.  When it is on you, you don’t know what to do and just want to escape it.  When it isn’t on you, you just want to get into it but don’t know how.

My final example has to do with honesty.  Aspies tend to be honest.  Not just honest, but too honest.  Honest to a fault.  Connor repeatedly demonstrates this when, mistaking social cues, he tries to be helpful by relating what he thinks is pertinent information (for example, how a wrinkle cream he saw advertised on TV could erase his teacher’s wrinkles).

NHL, too, is very honest.  In fact, it is very difficult for NHL to lie.  He tries, don’t get me wrong, but his lies are very easy to spot.  A few probing questions and his attempted lie crumbles to dust as he tells the truth.  Like NHL, I have problems lying as well.  Lying about anything major (say, more than a birthday present) is a very stressful endeavor.  I can try but the truth will blurt right out of my lips before long.

I really enjoyed the glimpse of life through Connor’s eyes and would recommend this eBook to anyone (adult or child) who knows someone with Asperger’s Syndrome.  Hopefully, Jodi will turn this into a series and allow us to see more of Connor’s world.  I, for one, can’t wait.

Spaghetti Is NOT a Finger Food is available from Amazon.com for the Kindle Fire, Kindle Cloud Reader, Kindle for iPad, and Kindle for Android.

B has also posted her take on Spaghetti is NOT a Finger Food.

Disclaimer; I purchased this book from Amazon and decided to review it.  The opinions above are my own.  I wasn’t compensated by anyone for this review, however the above link to the book is an affiliate link.

When Parenting, Exciting Can Be Bad And Boring Can Be Good

Digital_Thermometer_7094 (6) SmallOn Friday, I was feeling the End Of The Week Blues.  That moment when you wish that you could whip out a Universal Remote Control and hit fast forward until the weekend arrived.  I was craving a little excitement outside of the office.  I tweeted "Is it the weekend yet?"

I should have known better.

No sooner did I tweet that than I got a call from B saying that JSL was running a 101 fever and she was picking him up from school.  Yes, it looked like we were in for an "exciting" weekend.

JSL has had five febrile seizures (including one where he stopped breathing, turned grey, and required rescue breaths to start breathing again) so any fever is a dangerous and scary prospect.  We gave him medicine and his temperature stayed at around 101.  (It’s quick fluctuations in temperature that cause febrile seizures.)  We could tell he wasn’t feeling good when he turned down macaroni and cheese (his favorite food) for dinner.

That night, he slept in our bed so we could monitor him and quickly help him should his temperature rise.  At around 2 in the morning, he woke up complaining that his stomach hurt and he felt like he was going to puke.  I helped him to the bathroom but it became clear that something else was up.  I asked him if he was hungry and he said "yes".  We got him to eat a rice krispy treat.  Sure, it’s not the healthiest thing, but it was easy to feed him at 2am and gave him a quick shot of sugar.  (We correctly guessed that low blood sugar + hunger was mistaken for "gonna puke.")

JSL said he felt better and fell asleep.  B fell asleep too.  I lay there trying (and failing) to fall asleep, mostly worrying about JSL.  Then, just as I was getting to sleep, B yelled my name in panic.  I shot upright expecting to see either JSL seizing or something seriously wrong with NHL.  As I shot up and asked "what?", I saw JSL sleeping soundly next to B.  B woke up and informed me that she had had a nightmare about being in trouble and unable to yell for me.  She finally tried so hard to yell that she yelled in her sleep.  Needless to say, I couldn’t get back to sleep after that.

Thankfully, JSL got better after that one day and night.  The next day, his temperature returned to normal and no other symptoms manifested.  Any fears I had about JSL having the flu or another serious illness we proven wrong.  (There really was no sign that JSL had the flu to begin with, but I can’t help it… I’m a worrier.)  Most of all, I re-learned two parenting axioms that I tend to forget.  One: When you are parenting, exciting can be bad and boring can be good!  Two: Never ask The Universe for excitement without specifying exactly what kind of excitement you’d like.

NOTE: The "digital thermometer" image is by Alvimann and was obtained from MorgueFile.com.

Aloha Friday: Talking To Your Kids About Hate

hate-iconI’ve had to deal with hatred and bigotry two times in my life.  The first time was in high school when a friend of a friend began telling me about how he idolized Hitler and wished he had finished what he started.  To say that I was upset is an understatement.  I’m not violent by nature, but I honestly wanted to punch this person in the nose.

The other time was in college.  Someone (notorious for doing this sort of thing across the country) took out an ad in our college paper claiming that the Holocaust never happened.  I joined my college branch of Hillel to protest this and to compose a counter-ad.

Thankfully, my kids have been mostly shielded from bigotry so far.  So when we went to the New York State Museum’s civil war exhibit, they passed by a display of a Klu Klux Klan uniform and didn’t notice it at all.  When I pointed it out, they had no clue what it was or what kind of person would wear it.

I had a small discussion with my kids about how some people hate other people based on who they are or what color their skin is.  To be honest, I don’t think they really understood.  I’m pretty thankful that they’ve been shielded from this ugly side of reality, but I still worry about them being targets of hate.

My Aloha Friday question for today is: How do you talk to your children about hate/bigotry?

P.S. If you haven’t already, try out my Twitter applications: FollowerHQ and Rout.


Thanks to Kailani at An Island Life for starting this fun for Friday. Please be sure to head over to her blog to say hello and sign the linky there if you are participating.

Aloha Friday by Kailani at An Island Life

Aloha #172

Fishy Museum Activities

One of the things I like about going to the New York State Museum is that they always seem to have crafts or other activities for kids.  When the boys and I went last week, there were two fish related crafts to complete.

The first part involved fish painting.  Each of the boys was given a rubbery fish to paint.  They chose their colors and carefully painted their fishes until there was nowhere left to paint.

painting

Once the fish was painted, they were given a piece of construction paper.  By placing the construction paper over the fish and pressing down…

construction-paper

… they made a fish painting on the paper!

final fish

JSL’s fish was small enough that he was able to make two on the same piece of paper.

With the fish painting done, it was off to the fish washing station to help the fish get all clean and dry for the next kids to arrive.

cleaning

Later in the day, when we went back to collect our paintings (which had to be left to dry), the kids got to participate in another fish activity.  This time, they were given (one at a time), a fishing rod and taught how to cast out the line.  Instead of a hook, a block on the end would catch hold of some rubbery "fish" which could be reeled in.  A helper would then assist with the net to put the "catch of the day" in.

fishing

JSL wound up needing a bit of help with this, but both boys really enjoyed fishing in the museum.

Have you ever done any fun activities in your local museum?

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